On Friday (Jan. 14), in anticipation of the Big Snow due to hit us on Monday, I made a point of returning my library book, which was also due on Monday. The plan was to stay home and cocoon for the day on Monday. But then, around 5:30 on Friday afternoon, I got a phonecall from the office of my new rheumatologist. Could I come in on Monday morning at 10:30 for my first visit? I mentioned the impending snowstorm and the receptionist agreed that it could be a problem but said the office would still be open. I consulted briefly with Dianora who was agreeable to driving me there, snow or no, and told the receptionist I'd try to make the appointment.

A brief bit of background here. I'd been seeing the last rheumatologist for about 15 years and I really liked her. Her office is conveniently located at Centrepointe but since March 2020, all our consultations have been by phone. Then in August 2021, she informed me that she would be retiring in the spring and would be passing my file on to a different rheumatologist located on Greenbank Road in Craig Henry. I looked up the new one on RateMyMD and the evaluations were really all over the map.

By Sunday evening, it had already been announced that all public libraries would be closed on Monday and there would be no garbage or recycling pickup. By Monday morning, school closures and bus cancellations were announced throughout the region. There would be no mail delivery either. We did have a newspaper (it usually arrives around 2AM, which was probably before the snowfall began in earnest; we still don't have our paper today)

I phoned the rheumatologist's office shortly after 8AM and the receptionist was already there on site. She suggested I aim to arrive around 10:45. Even if the doctor wasn't ready for me by then, she said I'd be able to visit the lab (located in the same building) for bloodwork.

So we headed off just after 10AM, with the snow already rapidly accumulating, keeping to the main roads as much as possible. Thank goodness for winter tires! We got there around 10:30. The parking lot wasn't very well plowed although to be fair, keeping it clear would have necessitated having a plow circle it in a continuous loop in order to keep up. The parking machine was broken and a sign in the lobby of the building indicated that we would not be charged for parking. I guess you get what you pay for! After masking up and ensuring I had all the necessary documentation with me, I was in the office by 10:40. It was nearly 12:30 by the time I left. But the thing is, there was practically no wasted time in the nearly two hours I was there; in one way or another, almost all of that time was devoted to serving my rheumatological needs.

I was the only patient in the waiting room (several others had cancelled or were being treated by phone). After taking down or verifying my particulars, the receptionist handed me a questionnaire, clipboard and pen. I had to indicate the degree of difficulty I had with various daily tasks (which were quite specific - opening a milk carton and a jar, raising a glass to my mouth, walking up 5 steps), the extent to which I needed asistance and any aids or devices I used. I had to mark on a scale the amount of pain I experienced at various times of day. Many of the questions were multiple choice but there was also space for free-form comments.

Not long after I returned the questionnaire, I was shown into one of the offices. I don't know if there was a nurse on duty yesterday at all, but I was introduced to a medical resident who had been completing placements in various rheumatology practices (including the office of my old rheumatologist). He did some typical nurse-type activities with the stethoscope and blood pressure cuff and also some things my previous rheumatologist used
to do when we were still having in-person visits, like squeezing joints to test for swelling and/or pain. He reviewed all my medications and bloodwork with me. In short, he was VERY thorough. He asked a lot of questions and actually seemed interested in my answers; he gave me plenty of opportunity to ask him questions too. He offered some initial ideas about the directions he thought my treatment might go in terms of medications, required diagnostic procedures or other therapies. Then he went to fetch the rheumatologist and we had a three-way interaction. It was quite encouraging; I really felt included as part of the treatment team. If it hadn't been a major snow day, I doubt very much that I would have had the undivided attention of these two specialists for so long. While I wouldn't have chosen to go out in that weather, there were some unexpected advantages to the situation!

My new rheumatologist seems very knowledgeable and up on the latest research. He also seems like the kind of person willing to tweak his approach according to what works best for the individual patient. I had hoped initially that I'd be referred to another woman, especially as rheumatoid arthritis (RA) afflicts far more women than men and I gather diseases of all kinds often manifest themselves differently in men and women. But I'm getting pretty good vibes from him so far.

Some highlights: as my condition is stable right now, I'll probably only need bloodwork done every three months instead of every two. For the medications, there could obviously be a concern about dampening my immune response to treat my RA but thereby increasing my vulnerability to Covid and other infections. My previous rheumatologist advised me to go off two of my DMARDs for two weeks following my Covid and flu shots and I had only recently resumed taking them. I had found with the methotrexate in particular that the side effects were magnified this time. It's one of those drugs where I have to take 8 pills all at once, once a week and I suppose my body was simply not used to it any more. So we're looking at gradually tapering off the methotrexate and sulfasalazine. Also at increasing my folic acid dosage, something one of the pharmacists had also suggested to me a while ago. It will be cheaper now too, since I'll no longer be buying them over-the-counter, and won't involve taking so many pills since the entire dosage will be complete in a single pill. My next appointment will be in 4 months' time, by phone (although I have to get x-rays and bloodwork done in the meantime).

I emerged from the building just before 12:30 to find Dianora assisting a woman who had gotten stuck in the snowy parking lot (the second one that morning, apparently). It was her first Canadian winter and her car was not equipped with winter tires. She did have a snow shovel in her trunk (as did we) and someone else who had just arrived came to lend a hand as well.

After brushing off our own car, we made our way home, although instead of backing into the driveway and garage as she usually does, Dianora had to dive in nose-first after a bit of shovelling and help from a neighbour with a snowblower, and a push from another neighbour.

I had some panicked moments later that afternoon when I realized my credit card and Optimum card were not in my purse where I usually put them. The thing is, I had pulled them out when I got back to the car after my appointment. I was about to mark down my next appointment in my little pocket planner when I suddenly realized we were leaving the parking lot and hastily thrust the cards aside to fasten my seatbelt.

To make a long story shorter: after thoroughly ransacking my purse and checking the car twice without success, I waded out to the garage a third time and located them on the floor of the car under the passenger seat.

Enough excitement for one day, we decided as we sat down to watch the news, Coronation Street and Murdoch Mysteries.
This week's donation goes to Fondation Santé Gatineau. Hospitals in the Outaouais have been severely stressed of late, with some having to close entirely for weeks on end:

https://www.cbc.ca/news/canada/ottawa/rally-protesting-emergency-department-situation-outaouais-region-1.6103889?cmp=rss

I'm not sure how far my donation will go towards alleviating the immediate crises of staff shortages and burnout or government indifference or whatever you want to attribute the current situation to. Still, I see the Foundation's projects as investments in medium- and longer-term solutions. You can explore some of their ongoing initiatives here:

https://www.fondationsantegatineau.ca/en/

I haven't yet decided on a definite endpoint for my Philanthropic Phridays series. Perhaps late summer or early fall? There have certainly been some hopeful signs lately of a re-emergence of life as we used to know it. In some ways, I find this betwixt-and-between stage even more stressful and unsettling than a hard lockdown. We're still getting our bearings. As we enjoy some small but long-unaccustomed everyday pleasures, there's still that lingering trepidation about what will happen once the leaves start to fall and we all retreat indoors once again.

On the other hand, I don't want to wish my life away. I'm looking forward to enjoying some non-Zoom, non-Youtube entertainment over the next few weeks!
This week's donation goes to the CHEO Telethon:

https://www.cheotelethon.com/home

The Children's Hospital of Eastern Ontario holds a telethon once a year. Usually there are also lots of in-person events, the big one being the Teddy Bears' Picnic complete with B.A.S.H. tent for sick and injured teddy bears, food, face painting, fortune telling and plenty of parkland to enjoy. I used to have a purple HEEO (CHEO in French, at least in those days) sweatshirt with a teddy bear on it that I bought at the office as part of their fundraising activities there, but that of course is long gone now.

This year, with most of the traditional large fundraising events off the table, various local celebrities have been shaving their heads or dyeing their hair in vibrant hues to raise additional funds. I hope it works, as the amount raised in 2020 was down substantially from previous years, just at a time when children and youth are in the greatest state of crisis. Demands on CHEO's services have never been greater and the aftermath of Covid-19 in terms of mental health and clearing the backlog of non-Covid priorities stands to keep CHEO's workload higher than ever.

CHEO was not around when I was a kid but I do recall that I was somewhere in my teens when plans were in the works for it. I even volunteered for a few shifts at a booth at the Ex, to provide some general information and hand out a few pamphlets. I think there was a small-scale model of what the finished structure would look like and where the various services would be located. It's all so long ago but it did mean that I got free passes to get into the Exhibition grounds!

I'd still like to see an equivalent Quebec institution for the Outaouais, and this may happen yet. In April 2020, for example, I wrote about the Charlotte Mantha endowment fund, dedicated to building a Gatineau children's hospital:

https://blogcutter.dreamwidth.org/tag/charlotte+mantha+endowment+fund

I've been checking the Gatineau Hospital Foundation's website from time to time to see what projects are in the works and it does look as if Hull will have a new hospital in the next few years, though not solely dedicated to paediatrics. We shall see.
Today's donation goes to the Eldercare Foundation of Ottawa:

http://eldercarefoundation.ca

As is now well known, Long Term Care home residents and staff have been the group hardest hit by the Coronavirus in terms of numbers and severity of cases as well as fatalities.

This is not a completely new charity, having been around for about 12 years, but it has become especially relevant during the Covid-19 pandemic. Its founder, Adam Nihmey, was inspired to set it up based on his experiences visiting both of his grandmothers while they were in long-term care.

His co-founder, Betty Hope-Gittens, who had earlier chaired Help the Aged for 25 years, gave the charity a major boost last year, when she decided to walk all 800 kilometres of the Camino de Santiago trail in Spain to celebrate her 80th birthday. She raised over $200,000 for 13 long term care homes in Ottawa. Next year and beyond, she hopes to raise further funds for the Foundation by getting clients, staff, family and friends from each of the Ottawa homes involved in a sponsored walk within the home's grounds.

You can find a profile of this remarkable woman in the May/June issue of 55 Plus, which we received with today's paper. And we can all hope that when this pandemic is just a distant memory, those of us who are still around will be holding politicians' feet to the fire in the ongoing struggle to fix our long term care system!
Today's donation goes to The Immigrant Voice:

https://www.canadahelps.org/en/charities/la-voix-de-limmigrant-lvi-the-immigrant-voice-tiv/

Burnout amongst health care workers in Quebec, the province hardest hit by Covid-19, is a serious problem. Meanwhile, internationally trained doctors, nurses and other health care workers resident in Quebec may be looking to gain a foothold in the Canadian labour market. They possess knowledge and skills which are sorely needed at the moment, yet often struggle to cut through red tape to be recognized and fully licenced to practise here. Offering relief and respite to those already on the front lines of health care is a win-win situation.

Across Canada, the lockdown is gradually easing. But many health care visits and procedures have been postponed over the past two to three months, so there is definitely a backlog of patients waiting for care. As well, it remains to be seen if or when a second wave will overwhelm us. At that point, respite for those toiling on the front lines will be even more important than it is now.
A week or two ago, I was pleased to read that some pharmacies are establishing rules and policies about using a decent-sized font on the labels of pill vials. About time, I say! Now I have a few more suggestions for pharmacists.

First, the container itself. It's all very well to have a "child-proof" lid but please consider that it may also be elder-proof, arthritic-proof and just generally patient-proof! Pharmacists waste all this time "educating" us about the medicine itself, telling us all the information that's already on the information sheet inside the bag... and sticking pretty little sticky-labels on the bottle about not giving blood with this medication, avoiding exposure to sun with that one, not drinking or driving with yet another... but all the education in the world is pointless if you can't get the @#$%^ thing open! Some well-meaning friends and acquaintances have pointed out to me that I need only tell the pharmacist my preference. But surely the onus should be on the pharmacist to be proactive and ASK what the patient prefers? After all the dire warnings I've been reading about the perils and the slippery slope involved in selling MILK in 3-litre containers, I'm absolutely astounded that no one seems to have taken up the cause of inaccessible patient pill vials! When I was first prescribed Celebrex for my arthritis, I developed a habit of just loosely setting the lid upon the bottle between doses, which of course rather defeats the purpose of a child-proof, cat-proof lid - and to some degree of any lid, if you need to keep the bottle airtight and light-tight too. Now that the arthritis is under control, I find the push-and-turn type of lid considerably easier but if the diameter of the lid is too great (as has sometimes been the case), it doesn't fit comfortably in the palm of my (nor, I suspect many adults') hand while I do the "turn" part of the opening action.

Secondly, if you are going to offer patients the "convenience" of being able to order refills by touch-tone phone, PLEASE ensure that the pick-up date and time given by the robotic voice is in fact accurate! One time I was given a particular time to pick up my meds, went in well after that time and had to go back two more times on two different days before I actually managed to get them, over a week after they were due. And it wasn't even one of those drugs like oxycontin that I know are a bit "iffy" in terms of supply.

Thirdly, make sure that ALL the prescriptions you put in that little white bag are in fact intended for the person (or delegate of that person) to whom you hand them. That surely is so fundamental that it should should be covered in any Pharmacy 101 or Pharmacist's Assistant 101 course or whatever. In one instance I went to pick up a DMARD, Methotrexate, at the pharmacy (a major national chain) and it was considerably more expensive than I had expected. But I guess I didn't quite believe that the pharmacist had made a mistake - instead I assumed that I had probably, without thinking, submitted a prescription that had both Celebrex (a much more expensive drug) AND Methotrexate on the same script, and just handed them my credit card. Once I got home, I realized I also had a prescription for someone with a vaguely similar name. I promptly took it back and the pharmacy-person did take it back and issue a credit (which she warned might take a bit of time to appear on my credit card). Still, her reaction was certainly not what I expected. If anything, she seemed slightly annoyed at having to undo a transaction that was the pharmacy's fault in the first place. Luckily I'm still fairly healthy and able-bodied and was able to get back there without too much hassle. But can you imagine if I hadn't noticed for several weeks and poor Mr. Carter Bloggs (not his real name) had had to manage without a critical medication? Come to think of it, maybe that's what happened to MY medication in the instance I mentioned in the paragraph above! Remember that scene in "It's a Wonderful Life" where young George Bailey saves the druggist from making just such a career-limiting and lives-destroying move?

Lest you think from the above paragraphs that I'm down on pharmacists generally, let me assure you that nothing could be further from the truth. I really believe that medicare can only remain sustainable if we make full use of medical professionals other than (though obviously not to the exclusion of) doctors, especially specialists. Generally I believe that we DON'T avail ourselves enough of the skills and expertise of nurses, nurse practitioners, midwives, health care technicians and technologists of various sorts - and, of course, pharmacists. I was very impressed at how smoothly my flu shot went last fall, at a Rexall pharmacy near where I live. On the other hand, I was rather put off, many years ago, when my union endorsed an order-your-meds-through-the-mail program aimed at saving the consumer lots of money on prescription drugs. What would this do to the jobs of pharmacists, I wondered? Surely as good unionists we should be protecting jobs like this in the knowledge economy? Anyway, I never used the mail-order drug scheme and I guess a lot of others were leery of it too, because I think less than a year later, it was cancelled.

Would a national pharmacare program alleviate some of the problems I've had with the existing system or could it potentially make them worse? I'd like to think that it would improve things because at present, many people who have no coverage through their employment (and even a few who do) are literally facing crippling drug costs.

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